{"id":59927,"date":"2025-05-13T11:36:41","date_gmt":"2025-05-13T09:36:41","guid":{"rendered":"https:\/\/ravnopravnost.gov.rs\/?p=59927"},"modified":"2025-05-13T11:38:22","modified_gmt":"2025-05-13T09:38:22","slug":"poverenica-na-konferenciji-zajedno-za-retke","status":"publish","type":"post","link":"https:\/\/ravnopravnost.gov.rs\/rs\/poverenica-na-konferenciji-zajedno-za-retke\/","title":{"rendered":"Poverenica na konferenciji \u201eZajedno za retke\u201c"},"content":{"rendered":"

Do pre dvadesetak godina se o retkim bolestima malo znalo, a jo\u0161 manje o tome \u0161ta je potrebno da se polo\u017eaj ljudi koji boluju od ovih bolesti unapredi ili unapred prevenira. Zato je najva\u017enije \u010duti glas onih koji se sa retkim bolestima nose svaki dan, kao i glas organizacija u kojima su okupljeni oni koji mu\u010de iste ili sli\u010dni problemi, istakla je poverenica za za\u0161titu ravnopravnosti Brankica Jankovi\u0107 u uvodnom obra\u0107anju na konferenciji \u201eZajedno za retke \u2013 Uvodna konferencija\u201c \u00a0u organizaciji Nacionalne organizacije za retke bolesti Srbije (NORBS).<\/p>\n

Poverenik dugi niz godina sara\u0111uje sa ovim organizacijama i na\u0161e brojne preporuke i inicijative su, nadamo se, doprinele unapre\u0111enju polo\u017eaja osoba sa retkim bolestima. Izuzetno je va\u017eno da se postignuti standardi i nivo ostvarenih prava ne umanjuje, ve\u0107 iz dana u dan pove\u0107ava.<\/p>\n

Uz senzibilizaciju osoblja u radu sa pacijentima, solidarnost i poverenje, va\u017eno je da one koji \u017eive sa retkim bolestima za\u0161titimo od diskriminacije, a da njima i njihovim porodicama bude obezbe\u0111ena neophodna zdravstvena, psiholo\u0161ka, socijalna i svaka druga podr\u0161ka. Pred nama je jo\u0161 posla na unapre\u0111ivanju pravnog okvira, zdravstvene pismenosti, procedura, pravila i jasnih uputstava, kao i dostupnosti i pristupa\u010dnosti zdravstvene i socijalne za\u0161tite bez obzira da li je re\u010d o gradskom ili ruralnom podru\u010dju, istakla je Jankovi\u0107.<\/p>\n

 <\/p>\n\n ","protected":false},"excerpt":{"rendered":"

Do pre dvadesetak godina se o retkim bolestima malo znalo, a jo\u0161 manje o tome \u0161ta je potrebno da se polo\u017eaj ljudi koji boluju od ovih bolesti unapredi ili unapred prevenira. Zato je najva\u017enije \u010duti glas onih koji se sa retkim bolestima nose svaki dan, kao i glas organizacija u kojima su okupljeni oni koji…<\/p>\n","protected":false},"author":17,"featured_media":59925,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[95],"tags":[],"class_list":["post-59927","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-vesti-lat"],"yoast_head":"\nPoverenica na konferenciji \u201eZajedno za retke\u201c • Poverenik za za\u0161titu ravnopravnosti<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ravnopravnost.gov.rs\/rs\/poverenica-na-konferenciji-zajedno-za-retke\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Poverenica na konferenciji \u201eZajedno za retke\u201c • Poverenik za za\u0161titu ravnopravnosti\" \/>\n<meta property=\"og:description\" content=\"Do pre dvadesetak godina se o retkim bolestima malo znalo, a jo\u0161 manje o tome \u0161ta je potrebno da se polo\u017eaj ljudi koji boluju od ovih bolesti unapredi ili unapred prevenira. Zato je najva\u017enije \u010duti glas onih koji se sa retkim bolestima nose svaki dan, kao i glas organizacija u kojima su okupljeni oni koji...\" \/>\n<meta property=\"og:url\" content=\"https:\/\/ravnopravnost.gov.rs\/rs\/poverenica-na-konferenciji-zajedno-za-retke\/\" \/>\n<meta property=\"og:site_name\" content=\"Poverenik za za\u0161titu ravnopravnosti\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/poverenikzazastituravnopravnosti\/\" \/>\n<meta property=\"article:published_time\" content=\"2025-05-13T09:36:41+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2025-05-13T09:38:22+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/ravnopravnost.gov.rs\/wp-content\/uploads\/2025\/05\/naslec6d31-V.png\" \/>\n\t<meta property=\"og:image:width\" content=\"739\" \/>\n\t<meta property=\"og:image:height\" content=\"419\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"Milorad 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